Rowan Forbes Shepherd

Forbes Shepherd, R., Werner-Lin, A., Keogh, L.A., Delatycki, M.B., & Forrest, L.E. Reproduction and genetic responsibility: an interpretive description of reproductive decision-making for young people with Li-Fraumeni syndrome. Qualitative Health Research. 2022; 32(1):168-181.

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Werner-Lin, A., Forbes Shepherd, R., Young, J., Wilsnack, C., Greene, M.H., & Khincha, P.P. Embodied risk for families with Li-Fraumeni syndrome: 'Like electricity through my body'. Social Science in Medicine. 2022; 301: 114905.

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Forrest, L.E., Forbes Shepherd, R., Tutty, E.,... Young, M-A. What are the clinical and psychosocial outcomes for women who have received unexpected clinically actionable genetic information identified through research? A mixed-methods comparative study. Journal of Precision Medicine. 2022; 12(7): 1112.

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Tutty, E., Forbes Shepherd, R., Hoskins, C., Purvis, R., Shanahan, M., Boussioutas, A., Forrest, L. Becoming and being a parent with an inherited predisposition to diffuse gastric cancer: A qualitative study of young adults with a CDH1 pathogenic variant. Journal of Psychosocial Oncology. 2022; published online first: 1-17.

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Forbes Shepherd, R., Rising, C., Boyd, P., Wilsnack, C., Sleight, A., Thomspon, A., Werner-Lin, A. Adolescent and young adults Li-Fraumeni syndrome are at high risk of poor mental health outcomes. Invited speaker at the 6th International Li-Fraumeni Association Symposium, 2022, NCI, Rockville, MD, USA.

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Forbes Shepherd, R., Rising, C.J., Wilsnack, C.... Werner-Lin, A. Mental health of adolescents and young adults with Li-Fraumeni Syndrome: a mixed-method study. Poster presented at the European Society of Human Genetics (ESHG) 55th Annual Conference, 2022; Vienna, Austria.

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Forbes Shepherd, R., Werner-Lin, A., Keogh, L.A., Delatycki, M.B., Forrest, L.E. Reproduction and genetic responsibility: an interpretive description of reproductive decision-making for young people with Li-Fraumeni syndrome. Oral at the 5th ELSI Congress (Virtual), June, 2022.

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Forbes Shepherd, R., Werner-Lin, A., Keogh, L.A., Delatycki, M.B., & Forrest, L.E. 'I need to know if I'm going to die young': adolescent and young adult experiences of genetic testing for Li-Fraumeni syndrome. Journal of Psychosocial Oncology. 2021;39(1):54-73.

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Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., & Forrest, L.E. Benefits and burdens of risk management for young people with inherited cancer. Australian Journal of General Practice. Commissioned article. 2021;50(8):538-544.

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Forbes Shepherd, R., Tutty, E., Forrest, L.E., ... Young, M-A. Unselected women's experiences of receiving actionable genetic information for hereditary breast and ovarian cancer in a research setting: a qualitative study. Genetic Testing and Molecular Biomarkers. 2021; 25(12):741-748.

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Forrest, L.E., Forbes Shepherd, R., Young, M-A, Keogh, L.A., James, P.A. Young women's decision-making and experience of using tamoxifen to reduce BRCA1/2 breast cancer risk: a qualitative study. Psycho-oncology. 2021 Feb;30(2):159-166.

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Tutty, E., Horsley, P., Forbes Shepherd, R., & Forrest, L.E. The art and science of recruitment to a cancer rapid autopsy program: A qualitative study exploring patient and clinician experiences. Palliative Medicine. 2021;35(2):437-446.

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Forbes Shepherd, R. Youth-friendly care for adolescents and young adults with Li-Fraumeni syndrome. Invited keynote for the Li-Fraumeni Syndrome Association Youth Connect meeting (Virtual), June, 2021.

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Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., & Forrest, L.E. Health professionals' practice for young people with, or at risk of, Li-Fraumeni syndrome: An Australasian survey. Journal of Genetic Counseling. 2020;29(5):737-47.

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Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., Forrest, L.E. Adolescent and young adult experiences of Li-Fraumeni syndrome: an Australian perspective. Invited speaker at the 5th International Li-Fraumeni Association Symposium (Virtual), 2020, Dana Farber, Boston, USA.

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Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., Forrest, L.E. Negotiating autonomy and interdependence with family: how young people and health professionals navigate genetic testing for Li-Fraumeni syndrome. Oral presented at the European Society of Human Genetics (ESHG) 53rd Annual Conference (Virtual), 2020; Berlin, Germany.

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Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., Forrest, L.E. Adolescent and young adult experiences of genetic testing for Li-Fraumeni syndrome. Oral presented at the National Society of Genetic Counselors (NSGC) 38th Annual Conference, 2019; Salt Lake City, Utah, United States of America.

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Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., Forrest, L.E. Adolescent and young adult experiences of genetic testing for Li-Fraumeni syndrome. Invited speaker at Familial Aspects of Cancer: Research and Practice (KConFab), 2019; Kingscliff, Australia.

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Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., Forrest, L.E. Adolescent and young adult experiences of genetic testing for Li-Fraumeni syndrome. Oral presented at the Human Genetics Society of Australasia (HGSA) 43rd Annual Scientific Meeting, 2019; Wellington, New Zealand.

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^Rasmussen, V., ^Forbes Shepherd, R., Forrest, L. E., James, P. A., & Young, M-A. Men's experiences of recontact about a potential increased risk of prostate cancer due to Lynch Syndrome: "Just another straw on the stack". Journal of Genetic Counseling. 2019; 28(4), 750-759. ^ Co-first authors

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Tutty, E., Petelin, L., McKinley, J., Young, M.-A., Meiser, B., Rasmussen, V. M., Forbes Shepherd, R., . . Forrest, L. E. Evaluation of telephone genetic counselling to facilitate germline BRCA1/2 testing in women with high-grade serous ovarian cancer. European Journal of Human Genetics. 2019; 27(8), 1186-1196.

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Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., Forrest, L.E. "It really does affect everything, even if you don't have cancer": The experiences of Australian adolescents and young adults with Li-Fraumeni Syndrome. Oral presented at the 3rd Global Adolescent and Young Adult Cancer Congress, 2018; Sydney, Australia.

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Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., Forrest, L.E. Vulnerability, Control and Development: The experiences of young Australians with Li-Fraumeni Syndrome. Oral presented at the "Growing up in the Genomic Era" Symposium, 2018; Sydney, Australia.

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Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., Forrest, L.E. "It really does affect everything, even if you don't have cancer": The experiences of Australian adolescents and young adults with Li-Fraumeni Syndrome. Oral presented at Familial Aspects of Cancer: Research and Practice (KConFab), 2018; Kingscliff, Australia.

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Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., Forrest, L.E. Predictive genetic testing for Li-Fraumeni syndrome in minors: an ethical bind? Oral presented at the Hastings Centre for Bioethics, 2018; Garrison, New York, United States of America.

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Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., Forrest, L.E. The experiences of Australian adolescents and young adults with Li-Fraumeni Syndrome. Oral presented at the Clinical Genetics Branch, National Cancer Institute, 2018; Rockville, Maryland, United States of America.

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Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., Forrest, L.E. The experiences of Australian adolescents and young adults with Li-Fraumeni Syndrome. Oral presented at Interfaculty Centre for Biomedical Ethics and Law, KU Leuven, 2018; Leuven, Belgium.

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Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., Forrest, L.E. The psychosocial experiences of Australian adolescents and young adults with Li-Fraumeni Syndrome: a qualitative study. Poster presented at European Meeting on Psychosocial Aspects of Genetics, 2018; Milan, Italy.

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Forbes Shepherd, R., Lewis, A., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., & Forrest, L.E. A systematic review of how young people live with inherited disease: what can we learn for Li-Fraumeni Syndrome? Journal of Adolescent and Young Adult Oncology. 2018;7(5):525-545.

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Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., Forrest, L.E. The psychosocial experiences of Australian adolescents and young adults with Li-Fraumeni Syndrome: a qualitative study. Poster presented at the World Congress on Genetic Counselling, 2017; Cambridge, UK.

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Forbes Shepherd, R., Browne, T. K., & Warwick, L. A Relational Approach to Genetic Counseling for Hereditary Breast and Ovarian Cancer. Journal of Genetic Counseling. 2017;26(2):283-299.

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Forbes Shepherd, R., Browne, T.K., Warwick, L. A relational approach to genetic counselling for Hereditary Breast and Ovarian Cancer. Oral presented at: 39th Human Genetics Society of Australasia, Annual Scientific Meeting, 2015; Perth, Australia.

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