Rowan Forbes Shepherd

Title

Postdoctoral Fellow

Department

Clinical Genetics Branch, Division of Cancer Epidemiology and Genetics

Institution

National Institutes of Health

rowan.forbesshepherd@nih.gov

Education

PhD, The University of Melbourne; BMEDS (First Class Honors), Australian National University

Research Interests

Li Fraumeni Syndrome Qualitative Research Methods Adolescent and Young Adult Oncology

View all research interests

Biography

Rowan Forbes Shepherd, Ph.D., joined DCEG as a postdoctoral fellow in the Clinical Genetics Branch in 2021. Dr. Shepherd earned a Ph.D. in cancer genetic counseling/psychosocial genetics from the University of Melbourne, Australia. His thesis, “Coming of age with Li-Fraumeni syndrome (LFS): Perspectives of young people and health professionals,” and resultant publications were some of the very first studies aimed at understanding the psychosocial challenges faced by individuals with LFS. In DCEG, Dr. Forbes Shepherd is continuing his work on LFS, and expanding it to include inherited bone marrow failure syndromes, with the primary goal of developing psychosocial interventions for young people with high genetic risk of cancer.

Homepages

Contact Information

9609 Medical Centre Drive, Rockville, Maryland, 200850

2402765173

Research

Not mentioned yet.

Cloud List

Li Fraumeni Syndrome Qualitative Research Methods Adolescent and Young Adult Oncology Telephone Genetic Counselling Behavioral Sciences, Behavioral Science Social Science Mixed Method Approaches Cancer Genetics Psychosocial Intervention Human Genetics Society Young People Predictive Genetic Testing Clinical Drug Trials Unit Staff Evaluation Report Qualitative Study Exploring Patient Experiences Cancer Care Delivery Research National Cancer Institute Ovarian Cancer Australian Consortium Qualitative Interview Data Health Professionals Practice Mixed Methods Comparative Study Poor Mental Health Outcomes Hereditary Breast Invited Speaker European Society Australian Adolescents Genetic Responsibility Interpretive Description Mixed Methods Study, Mixed Method Study Actionable Genetic Information Detailed Analyses Islander Health Performance Framework Published Online First Key Steps Routine Clinical Care United States Relational Approach Australian Perspective Dana Farber Familial Aspects Gastric Cancer Health Judgement High Risk Psychosocial Experiences Cancer Rapid Autopsy Program Cancer Survivorship Cascade Cancer Research Program Clinician Experiences General Practice Inherited Cancer Multi Site Outcome Measures Research Setting Risk Management Routine Cancer Care Young Women Youth Friendly Care Biomedical Researchers Genetic Counselors High Grade National Society Prostate Cancer Global Health Co First Authors World Congress Clinical Genetics Branch Ethical Bind Genomic Era New Zealand Psychosocial Aspects Social Policy Systematic Review Young Australians

List of Publications (32)

In 2022

Forbes Shepherd, R., Werner-Lin, A., Keogh, L.A., Delatycki, M.B., & Forrest, L.E. Reproduction and genetic responsibility: an interpretive description of reproductive decision-making for young people with Li-Fraumeni syndrome. Qualitative Health Research. 2022; 32(1):168-181.
Found on CV

Werner-Lin, A., Forbes Shepherd, R., Young, J., Wilsnack, C., Greene, M.H., & Khincha, P.P. Embodied risk for families with Li-Fraumeni syndrome: 'Like electricity through my body'. Social Science in Medicine. 2022; 301: 114905.
Found on CV

Forrest, L.E., Forbes Shepherd, R., Tutty, E.,... Young, M-A. What are the clinical and psychosocial outcomes for women who have received unexpected clinically actionable genetic information identified through research? A mixed-methods comparative study. Journal of Precision Medicine. 2022; 12(7): 1112.
Found on CV

Tutty, E., Forbes Shepherd, R., Hoskins, C., Purvis, R., Shanahan, M., Boussioutas, A., Forrest, L. Becoming and being a parent with an inherited predisposition to diffuse gastric cancer: A qualitative study of young adults with a CDH1 pathogenic variant. Journal of Psychosocial Oncology. 2022; published online first: 1-17.
Found on CV

Forbes Shepherd, R., Rising, C., Boyd, P., Wilsnack, C., Sleight, A., Thomspon, A., Werner-Lin, A. Adolescent and young adults Li-Fraumeni syndrome are at high risk of poor mental health outcomes. Invited speaker at the 6th International Li-Fraumeni Association Symposium, 2022, NCI, Rockville, MD, USA.
Found on CV

Forbes Shepherd, R., Rising, C.J., Wilsnack, C.... Werner-Lin, A. Mental health of adolescents and young adults with Li-Fraumeni Syndrome: a mixed-method study. Poster presented at the European Society of Human Genetics (ESHG) 55th Annual Conference, 2022; Vienna, Austria.
Found on CV

Forbes Shepherd, R., Werner-Lin, A., Keogh, L.A., Delatycki, M.B., Forrest, L.E. Reproduction and genetic responsibility: an interpretive description of reproductive decision-making for young people with Li-Fraumeni syndrome. Oral at the 5th ELSI Congress (Virtual), June, 2022.
Found on CV

In 2021

Forbes Shepherd, R., Werner-Lin, A., Keogh, L.A., Delatycki, M.B., & Forrest, L.E. 'I need to know if I'm going to die young': adolescent and young adult experiences of genetic testing for Li-Fraumeni syndrome. Journal of Psychosocial Oncology. 2021;39(1):54-73.
Found on CV

Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., & Forrest, L.E. Benefits and burdens of risk management for young people with inherited cancer. Australian Journal of General Practice. Commissioned article. 2021;50(8):538-544.
Found on CV

Forbes Shepherd, R., Tutty, E., Forrest, L.E., ... Young, M-A. Unselected women's experiences of receiving actionable genetic information for hereditary breast and ovarian cancer in a research setting: a qualitative study. Genetic Testing and Molecular Biomarkers. 2021; 25(12):741-748.
Found on CV

Forrest, L.E., Forbes Shepherd, R., Young, M-A, Keogh, L.A., James, P.A. Young women's decision-making and experience of using tamoxifen to reduce BRCA1/2 breast cancer risk: a qualitative study. Psycho-oncology. 2021 Feb;30(2):159-166.
Found on CV

Tutty, E., Horsley, P., Forbes Shepherd, R., & Forrest, L.E. The art and science of recruitment to a cancer rapid autopsy program: A qualitative study exploring patient and clinician experiences. Palliative Medicine. 2021;35(2):437-446.
Found on CV

Forbes Shepherd, R. Youth-friendly care for adolescents and young adults with Li-Fraumeni syndrome. Invited keynote for the Li-Fraumeni Syndrome Association Youth Connect meeting (Virtual), June, 2021.
Found on CV

In 2020

Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., & Forrest, L.E. Health professionals' practice for young people with, or at risk of, Li-Fraumeni syndrome: An Australasian survey. Journal of Genetic Counseling. 2020;29(5):737-47.
Found on CV

Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., Forrest, L.E. Adolescent and young adult experiences of Li-Fraumeni syndrome: an Australian perspective. Invited speaker at the 5th International Li-Fraumeni Association Symposium (Virtual), 2020, Dana Farber, Boston, USA.
Found on CV

Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., Forrest, L.E. Negotiating autonomy and interdependence with family: how young people and health professionals navigate genetic testing for Li-Fraumeni syndrome. Oral presented at the European Society of Human Genetics (ESHG) 53rd Annual Conference (Virtual), 2020; Berlin, Germany.
Found on CV

In 2019

Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., Forrest, L.E. Adolescent and young adult experiences of genetic testing for Li-Fraumeni syndrome. Oral presented at the National Society of Genetic Counselors (NSGC) 38th Annual Conference, 2019; Salt Lake City, Utah, United States of America.
Found on CV

Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., Forrest, L.E. Adolescent and young adult experiences of genetic testing for Li-Fraumeni syndrome. Invited speaker at Familial Aspects of Cancer: Research and Practice (KConFab), 2019; Kingscliff, Australia.
Found on CV

Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., Forrest, L.E. Adolescent and young adult experiences of genetic testing for Li-Fraumeni syndrome. Oral presented at the Human Genetics Society of Australasia (HGSA) 43rd Annual Scientific Meeting, 2019; Wellington, New Zealand.
Found on CV

^Rasmussen, V., ^Forbes Shepherd, R., Forrest, L. E., James, P. A., & Young, M-A. Men's experiences of recontact about a potential increased risk of prostate cancer due to Lynch Syndrome: "Just another straw on the stack". Journal of Genetic Counseling. 2019; 28(4), 750-759. ^ Co-first authors
Found on CV

Tutty, E., Petelin, L., McKinley, J., Young, M.-A., Meiser, B., Rasmussen, V. M., Forbes Shepherd, R., . . Forrest, L. E. Evaluation of telephone genetic counselling to facilitate germline BRCA1/2 testing in women with high-grade serous ovarian cancer. European Journal of Human Genetics. 2019; 27(8), 1186-1196.
Found on CV

In 2018

Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., Forrest, L.E. "It really does affect everything, even if you don't have cancer": The experiences of Australian adolescents and young adults with Li-Fraumeni Syndrome. Oral presented at the 3rd Global Adolescent and Young Adult Cancer Congress, 2018; Sydney, Australia.
Found on CV

Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., Forrest, L.E. Vulnerability, Control and Development: The experiences of young Australians with Li-Fraumeni Syndrome. Oral presented at the "Growing up in the Genomic Era" Symposium, 2018; Sydney, Australia.
Found on CV

Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., Forrest, L.E. "It really does affect everything, even if you don't have cancer": The experiences of Australian adolescents and young adults with Li-Fraumeni Syndrome. Oral presented at Familial Aspects of Cancer: Research and Practice (KConFab), 2018; Kingscliff, Australia.
Found on CV

Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., Forrest, L.E. Predictive genetic testing for Li-Fraumeni syndrome in minors: an ethical bind? Oral presented at the Hastings Centre for Bioethics, 2018; Garrison, New York, United States of America.
Found on CV

Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., Forrest, L.E. The experiences of Australian adolescents and young adults with Li-Fraumeni Syndrome. Oral presented at the Clinical Genetics Branch, National Cancer Institute, 2018; Rockville, Maryland, United States of America.
Found on CV

Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., Forrest, L.E. The experiences of Australian adolescents and young adults with Li-Fraumeni Syndrome. Oral presented at Interfaculty Centre for Biomedical Ethics and Law, KU Leuven, 2018; Leuven, Belgium.
Found on CV

Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., Forrest, L.E. The psychosocial experiences of Australian adolescents and young adults with Li-Fraumeni Syndrome: a qualitative study. Poster presented at European Meeting on Psychosocial Aspects of Genetics, 2018; Milan, Italy.
Found on CV

Forbes Shepherd, R., Lewis, A., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., & Forrest, L.E. A systematic review of how young people live with inherited disease: what can we learn for Li-Fraumeni Syndrome? Journal of Adolescent and Young Adult Oncology. 2018;7(5):525-545.
Found on CV

In 2017

Forbes Shepherd, R., Keogh, L.A., Werner-Lin, A., Delatycki, M.B., Forrest, L.E. The psychosocial experiences of Australian adolescents and young adults with Li-Fraumeni Syndrome: a qualitative study. Poster presented at the World Congress on Genetic Counselling, 2017; Cambridge, UK.
Found on CV

Forbes Shepherd, R., Browne, T. K., & Warwick, L. A Relational Approach to Genetic Counseling for Hereditary Breast and Ovarian Cancer. Journal of Genetic Counseling. 2017;26(2):283-299.
Found on CV

In 2015

Forbes Shepherd, R., Browne, T.K., Warwick, L. A relational approach to genetic counselling for Hereditary Breast and Ovarian Cancer. Oral presented at: 39th Human Genetics Society of Australasia, Annual Scientific Meeting, 2015; Perth, Australia.
Found on CV

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Colleagues

Charles Grugan

National Institutes of Health

Jonathan Shikany

National Institutes of Health

Lauren McCormick

National Institutes of Health

View All Colleagues